Title

Ethics, policy, and educational issues in genetic testing

Document Type

Article

Peer Reviewed

1

Publication Date

1-1-2006

NLM Title Abbreviation

J Nurs Scholarsh

Journal/Book/Conference Title

Journal of nursing scholarship

PubMed ID

16773914

Abstract

PURPOSE: Analyze ethics, public policy, and education issues that arise in the United States (US) and the United Kingdom (UK) when genomic information acquired as a result of genetic testing is introduced into healthcare services. ORGANIZING CONSTRUCT: Priorities in the Ethical, Legal, and Social Issues Research Program include privacy, integration of genetic services into clinical health care, and educational preparation of the nursing workforce. These constructs are used to examine health policies in the US and UK, and professional interactions of individuals and families with healthcare providers. FINDINGS: Individual, family, and societal goals may conflict with current healthcare practices and policies when genetic testing is done. Current health policies do not fully address these concerns. Unresolved issues include protection of privacy of individuals while considering genetic information needs of family members, determination of appropriate monitoring of genetic tests, addressing genetic healthcare discrepancies, and assuring appropriate nursing workforce preparation. CONCLUSIONS: Introduction of genetic testing into health care requires that providers are knowledgeable regarding ethical, policy, and practice issues in order to minimize risk for harm, protect the rights of individuals and families, and consider societal context in the management of genetic test results. Understanding of these issues is a component of genetic nursing competency that must be addressed at all levels of nursing education.

Keywords

Confidentiality/ethics/legislation & jurisprudence, Education, Professional, Genetic Research/ethics/legislation & jurisprudence, Genetic Testing/ethics/legislation & jurisprudence/organization & administration, Great Britain, Human Rights/legislation & jurisprudence, Humans, Public Policy, Social Control, Formal, United States

Published Article/Book Citation

Journal of nursing scholarship, 38:2 (2006) pp.119-125.

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URL

https://ir.uiowa.edu/nursing_pubs/1404