Title

Patient and parent/guardian perspectives on the health care of adults with mental retardation

Document Type

Article

Peer Reviewed

1

Publication Date

8-1-2006

NLM Title Abbreviation

Ment Retard

Journal/Book/Conference Title

Mental retardation

PubMed ID

16834461

DOI of Published Version

10.1352/0047-6765(2006)44[239:PAGPOT]2.0.CO;2

Abstract

Individuals with mental retardation and their parents/guardians have long been neglected in health care research. In this study we used a qualitative methodology to describe the experiences adults with mental retardation and their parents/guardians have with the delivery of primary care services. Semi-structured in-depth interviews were conducted with 12 adults who had mental retardation and 9 parents/guardians. The grounded theory approach was utilized to guide data collection and analysis. Findings suggest an overall positive experience with primary care services. Unique themes were identified that distinguished parent/guardian experiences from those of adults with mental retardation, who focused on immediate, concrete issues related to service delivery, whereas parents/ guardians focused on more peripheral or abstract issues related to the delivery of primary care.

Keywords

Adolescent, Adult, Attitude to Health, Health Services Research, Humans, Interviews as Topic, Legal Guardians/psychology, Mental Retardation/therapy, Mentally Disabled Persons/psychology, Middle Aged, Parents/psychology, Patient Satisfaction, Primary Health Care/standards

Published Article/Book Citation

Mental retardation, 44:4 (2006) pp.239-248. DOI:10.1352/0047-6765(2006)44[239:PAGPOT]2.0.CO;2.

This document is currently not available here.

Share

COinS
 

URL

https://ir.uiowa.edu/nursing_pubs/1663