Patient and parent/guardian perspectives on the health care of adults with mental retardation
NLM Title Abbreviation
DOI of Published Version
Individuals with mental retardation and their parents/guardians have long been neglected in health care research. In this study we used a qualitative methodology to describe the experiences adults with mental retardation and their parents/guardians have with the delivery of primary care services. Semi-structured in-depth interviews were conducted with 12 adults who had mental retardation and 9 parents/guardians. The grounded theory approach was utilized to guide data collection and analysis. Findings suggest an overall positive experience with primary care services. Unique themes were identified that distinguished parent/guardian experiences from those of adults with mental retardation, who focused on immediate, concrete issues related to service delivery, whereas parents/ guardians focused on more peripheral or abstract issues related to the delivery of primary care.
Adolescent, Adult, Attitude to Health, Health Services Research, Humans, Interviews as Topic, Legal Guardians/psychology, Mental Retardation/therapy, Mentally Disabled Persons/psychology, Middle Aged, Parents/psychology, Patient Satisfaction, Primary Health Care/standards
Published Article/Book Citation
Mental retardation, 44:4 (2006) pp.239-248. DOI:10.1352/0047-6765(2006)44[239:PAGPOT]2.0.CO;2.