Title

Strategies Used by Teens Growing up in Families with Huntington Disease.

Document Type

Article

Peer Reviewed

1

Publication Date

9-1-2013

NLM Title Abbreviation

J Pediatr Nurs

Journal/Book/Conference Title

Journal of pediatric nursing

PubMed ID

23531469

DOI of Published Version

10.1016/j.pedn.2013.02.030

Abstract

The purpose of this study was to identify helpfulness of strategies used by teens growing up in families with Huntington disease (HD). Forty-four participants responded to a mailed HD Family Survey-Teens Strategies. Strategies were those with strong positive correlation between use and perceived helpfulness, and those with negative or inverse relationships. Obtaining information, thinking about or doing something else, and actions on behalf of the parent with HD were rated as highest use and perceived helpfulness. Emotional suppression had high use but low helpfulness. Participants reported using numerous helpful strategies. Social support was often unavailable to help manage teen concerns.

Keywords

Adaptation, Psychological, Adolescent, Adolescent Behavior, Adult, Emotions, Family Health, Female, Helping Behavior, Humans, Huntington Disease, Male, Parent-Child Relations, Young Adult

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URL

https://ir.uiowa.edu/nursing_pubs/1982